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July 11, 2008

Comments

niksmom

Susan, this should be right up there among your best posts! ANd SHAME on the late talker mssg board! Why *couldn't* a child be l/t AND autistic? Sigh...

Wish, wish, wish, I were going to BlogHer...if only to tell you face to face how much I adore you and your family! xo

Emily

Susan, I've mentioned it before, but I remember you during some part of this time, I think...it's when we met at OT. I remember your dread of the word "autism," and after Isaac had received an eval from the GG people and said that word, how upset you were, especially after one specific phone call. I wasn't sitting there feeling superior or anything with our being further down the path, but I knew at the time that you'd reach that point in the path, too, and that everyone has to take their own time to get there. Some people, like Lexi's mom on Autism: The Musical, don't seem to quite make it. Obviously, you have made it.

I also knew that Isaac was going to be OK. He's smart as a whip--that was apparent even then--and just needed some work to focus some of that into recognition of the world around him. And now, he sees everything.

I am *appalled* that that woman could drink tea at your house and then summarily remove you from a message board without even telling you about it beforehand and then provide that "rationale" for having done so. Good Lord. Human behavior never ceases to amaze me, cynic though I am. How DARE you have AUTISM resources on your blog. Oh, the humanity.

There are bad parents in the world, but parents who refuse to accept their children for who they are rank up there somewhere.

drama mama

Um, I read that book too.

Didn't do the board, but really, really thought that I had me a little Einstein.

After a while, every time I heard the strains of the "Little Einsteins" song, I started to laugh.

It IS a process, isn't it?

So glad that you see clearly, and that you are here for all of us.

Ellen Gerstein

This is why I love your blog. Honesty and optimism can go hand and hand, with a big dose of love.

Chris

"Let's work here."

For sheer brilliance I'd say that tops Einstein's refrigerator.

kristen

Thank you Susan, this is lovely.

Jordan

Susan, I agree with Niksmom, that this is one of your best yet. Like Emily, I remember those early days of struggle. Watching a family grow in their acceptance of a beautiful child like Isaac is one of the most rewarding parts of my work. I am so happy for you all.

kal

Wow, wonderful post. It sure is a wild ride and you capture it all so well.

squid

Denial is a spectrum, too, it seems. :)

I try to have patience with parents like the woman you describe, to tell myself that our quirky kids often have quirky parents, but it's not always easy. I can thank a local mom for getting me over my hangups about saying the word 'c**t' out loud.

People often ask me what my son's Special Gifts are, and I now reply that they are the friends I wouldn't have made without him.

I always take heart from parents who write so lovingly about their children, labeled or not.

Suzanne

Susan,

I am new to your blog and only 6 months into our own spectrum of issues. You capture your own journey so well, and I must be moving along on mine since it all made sense to me.
Thanks for writing,
Suzanne

Kristina Chew

To joy and peace and grace, I'd also add, fun and constant learning, and a beautiful journey.

A work colleague told me flat-out when I first met her that her son has Einstein's Syndrome. I was not sure what to say----he sounds like he has Asperger's, from her description, and he's needed a lot of special services, though is now mainstreamed; over time, she's started to say he seems to maybe sort of have something that would put him on the autism spectrum.

Friends of the family gave me that "Late Talking Children" book by Thomas Sowell when Charlie was 2. I was offended and annoyed; it just seemed to belittle the significant challenges Charlie faced. Over time, those friends have been especially interested in Charlie and in raising him and I've thought back to their son, who had his share of growing up "issues," and wondered.......

Thanks for the last sentence of your post, especially.

Christa

Don't be afraid, indeed.

Among the Hyperlexia community, there is much controversy along the lines of "is it or isn't it" autism. Some parents are very adamant about the fact that their child is NOT autistic, to the point where you have to ask, "What are you afraid of?"

No matter what you call it, there are lots of us who have kids that don't quite fit in, that struggle with social skills and coping skills and find this world just a bit too unpredictable and chaotic for their liking. We love our kids. We have trouble sometimes. We feel a little crazy sometimes.

Let's just stick together, instead of splitting hairs, or worse (like the intolerance of this woman you describe) purely out of fear.

Thanks, as always, Susan.

Kathryn

Hey! I'm new to your blog. I've got to admit when our daughter wasn't talking when she was supposed to be, and they weren't quite sure if it was language delay, autism, PPD-NOS, or what (now that she's older she's been diagnosed as having Asperger's)---I thought about Einstein too. I think those on the late talker's message board might be in a little bit of denial. It is all very scary. Been there, done that. I find it's best to embrace my child for who she is and help her so she can navigate her way through the world. Just like Einstien's Mommy did with him.

girija

hi, i live in bombay - india. my 5 year old son is hyperlexic. thats a word no one knows her. PDD-NOS nope not that either. slow learner - wellll yes. i've battled this whole einstein thing with the world. my son could recognise flags of 50 odd countries when he was 3. he could pronounce yugoslavia but not make a sentence. how does that seem ok? im blessed to have my family stand by me. if ved had not gotten help then, he'd have not been where he is today. the other day i showed him a flash card with the word pretty and asked him to make a sentence. he says - all the girls are pretty.
you are an amazing mom. your sons lucky that you did not stick to the 'convenient' answer and searched for the truth. it amazes me how moms from across the globe (youre 12 hours behind us to be precise) give me so much strength, positivity and courage to go on. its a bloody hards life here bringing up my boy. ok thats a long post so id better stop. but thanx for sharing... look how far you've reached!!!

The teadrinker

Hi you all,

I am the woman that came to Susan's home and had tea after being invited there. I brought my little late talker, indeed that is what he is/was. Autism has been RULED OUT for him after I rigidly seeked evaluations to rule in or out! I searched for the truth like all of you did, motivated by the love and light of my life, my son Eric.

Eric today is an 8 year old happy child, bilingual and gifted in several areas. He has friends and loves to play with them.

I just wrote this to let you all know if I had learned he was autistic I would have embraced that as well. I would have done what every mom would have done and seeked the best intervention for him. I looked for the best people to perform evaluations based on understanding late talkers and any other disorder on or off the spectrum. That is what the late talking board is about. Seeking correct evaluations done by skilled clinicians. You search for the truth. The truth that will get your child the best possible interventions to help him or her.

I know several kids with autism and I love them all dearly. They are just as wonderful and unique as any other of God creations.

I wish you all the best.

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