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November 01, 2007



Susan, there's so much here. So many things to think about.

It's hard to know what to let go of when the schedule becomes too much. I don't think there are any right (or easy!) answers, but I do know that sometimes taking a step back, slowing down, spending more down time together can give you a new perspective. Good luck!

And thanks for a great post.

cry it out!

I'm glad you got philosophical tonight. That was moving. Truly, truly moving. Opening up. Would we could all.


What a beautiful post, Susan. Isaac is such a special, smart and funny child - and he's lucky to have such intelligent and accepting parents. I love reading about how well he's doing and it sounds like he has come so far.

I'm going to (try and) load some Offenbach on my MP3 player now. Happy weekend!!


I think it's such a fine line between doing all that you can to help your child grow and learn and becoming consumed. I know I struggle with it on a daily basis. I think that's why I have such a hard time with the whole biomedical thing, and the concept of recovery. I become so intent on focusing on every little detail that I miss the moments. Somehow, the term 'recovering' as opposed to 'recovery' kind of helps me think of it differently. Perhaps I should shift the focus to just evolving. Hmmm, that's a concept to wrap my head around.


"I wish the same for my son. I want him to open himself to the world, bit by bit..." Susan, from what I've been reading over the past few months, Isaac is doing exactly that. And in such a beautiful way. Maybe not perfectly linear and exactly "typical" but it is in HIS way. That's the way he needs to do it. It's so hard to strike the balance between the schedule and the down time. I wonder if Nik's being sick so much lately is his way of dealing with it and forcing the down time? (That just occurred to me as I was writing...hmmm.)

Put it inthe perspective of "work" and it may become easier to delineate. Maybe.

Sending love to you and your beautiful boy.

drama mama

Oh, Susan, so beautifully, beautifully said.

Sending bushels of love and light and hope to you.

Time. It's just time.

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